• CuddlyCassowary@lemmy.world
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    18 hours ago

    My former rowing partner was one of the people blinded by eye drops before these safety standards were established. I’m sure she can vouch for how not-a-big-deal this is after losing her job, marriage, home, and almost her life. Fuckers.

    • prole@lemmy.blahaj.zone
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      9 hours ago

      You don’t understand, that’s just the free market working as intended. If she didn’t want to go blind, then she should have done her due diligence and went with a product that doesn’t blind you.

      Hoping /s isn’t needed, but these days…

    • Sturgist@lemmy.ca
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      18 hours ago

      I’m sorry. Who the fucking fuck breaks up a marriage because their partner was blinded by using what they assumed was a safe product?
      Beyond the fact that they were blinded in the first place, this bothers me almost as much as everything else put together.

      FFS… I’m so sorry.

      • PM_Your_Nudes_Please@lemmy.world
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        6 hours ago

        It’s easy to say stuff like this, but the harsh reality is that disability (especially if it’s sudden disability later in life) is a massive stressor for everyone involved. Suddenly going blind is an instant and massive lifestyle change for everyone surrounding the victim.

        There’s also all of the co-morbid stuff that follows a sudden disability. Depression, anxiety, resentment, PTSD, etc all have the capacity to drastically change a person’s attitude and outlook on life.

        I seriously doubt the breakup was instant. My bet is that it was a slow wedge that got driven between them, as the husband also had to adjust to the new limited lifestyle and began to resent her disability for it. Plus with the associated depression and trauma that inherently follows situations like this, the relationship 100% has the potential to be slowly strangled.

        Source: Am married to someone who was left disabled by a sudden disease. We’re still married, but that’s largely because we were both willing to do a lot of therapy and work to remain together. And I’d be lying if I said I didn’t miss my social life before my partner’s disability.

      • dumples@midwest.social
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        8 hours ago

        Want to see something sad look at the divorce rate for women who are diagnosed with cancer. Its so common that most doctors and support groups talk about it after the diagnosis. So I am not surprised but still disgusted.

      • Kairos@lemmy.today
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        16 hours ago

        TBF there could have been other things, like the person who went blind having a major personality change.

        • CuddlyCassowary@lemmy.world
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          12 hours ago

          Yeah, she was 34 when it happened and fell into a pretty deep depression for years. The amount of work she had to do to become baseline functional again was more than her marriage could bear. There were no kids, so at least that wasn’t a factor. The good news is she met someone amazing and got remarried once she had the energy to focus on that again. Overall her life is pretty incredible again, but it was a very tough journey to get there.

          One aside that I think is cool that I learned about guide dogs is they can be trained to watch for obstacles at human head height. Rowing racing shells have metal oar riggers that stick out pretty far and when they’re stored on racks, and can be at a variety of heights and are easy to trip over or walk into. Her dog was trained to watch for these sticking out at up to about 6’ and walk her around them even if there was no obstruction on the floor. He knew the difference between what she could fit under and what he had to navigate her around.

        • Sturgist@lemmy.ca
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          15 hours ago

          Totally. I replied to another comment saying basically the same thing. Check that one if you want some over sharing.

            • Sturgist@lemmy.ca
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              13 hours ago

              It’s a sign of her patience and character that she put up with my _ball_istic attitude… actually… she’s a fucking saint for putting up with me before all this went down…

              People jokingly call their partner their better half. She’s literally the best thing that ever happened to me. Also weeeelllllll out of my league.

              #blessed or some shit

      • justsomeguy@lemmy.world
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        17 hours ago

        Wouldn’t jump to conclusions here.There’s a million different scenarios of how this might’ve gone down. I’ve seen some people grow incredibly bitter after becoming disabled or chronically ill. They’d push anyone away.

        • Sturgist@lemmy.ca
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          15 hours ago

          I suppose that’s fair. Just so far outside my personal experience, guess that’s a me issue…not a reality issue.

          Tap for over sharing.

          I’ve had mystery testicular pain since June last year. After minimal testing they’ve basically said:
          🤷 Chronic pain? Take drugs.
          Incredibly bitter? ✅
          Massive depression? ✅
          Trying to push my wife and friends away? ✅

          Wife wasn’t having it, I’d say that we’re closer now?
          Obviously not a common thing.

          • gravitas_deficiency@sh.itjust.works
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            9 hours ago

            Seriously though, dude: get a new PCP.

            I’m dumping mine over some stupid pharmaceutical shit that has ultimately spiraled into noticeable cognitive decline and pretty bad depression (good news: appears reversible if I stop taking the thing. Bad news: I go into withdrawal if I stop taking the thing).

            • Sturgist@lemmy.ca
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              4 hours ago

              Yeeeesh! Yeah. That’s… that’s definitely a reason to get a new Dr.

              Half my life ago I was doing…alllllll the drugs. At levels and mixes that quite honestly should have killed me. Of the friend group I had at that time, 7 of us, there’s myself and one other that aren’t dead, or been in the clink for 15 years and looking at a minimum of another 20.
              When I saw the way I was headed, after the first of our group had died, and while I was serving a frankly very lenient non-custodial criminal sentence, I detoxed off coke/crack, meth and heroin (smoked not injected) all at the same time.
              I can tell you, not exactly how bad or in what way, it’s gonna suck. I really really feel for you. Just make sure you follow advice on how to safely come off it, there’s a lot of drugs, legal and not, that can easily kill you if you just stop taking them.
              Be safe fam.

              So I’m in the UK, and while there’s a bit of leeway to see a GP that’s not in your catchment area, the next closest to where I live is really far. Also it’s not really the GP’s fault. They’re required to follow protocol dictated by the NHS. He walked me through it. There’s a program, you punch in the symptoms, follow the questions down the flow chart, it gives you a likely cause. Things like the intensive testing I’ve been told to try and get? He’s really just not authorised to refer me for that. We’ve had quite a long chat about it, and it really just isn’t something that he’s able to do. That would have to be something that a specialist sends me for. I’ve been on the waiting list for 25 weeks, so only 20ish more to go.
              The results of decades of underfunded health care systems…

          • Zidane@sh.itjust.works
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            15 hours ago

            Sounds like you need some more invasive tests or more medical opinions. Either way hope you get some relief soon brother

            • Sturgist@lemmy.ca
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              15 hours ago

              Ohhhhh… that’d definitely be a hard yes.

              Tap for more over sharing.

              I’m on a lengthy wait list for the NHS urologist, so I went private. Paid £300 for a pleasant man in his 50s to fondle me for about 3mins, and to say nothing wrong anymore, whatever it was has probably passed and it’s your brain not accepting that, so here’s a referral to my equally expensive colleague for an initial consultation for chronic pain management. GP isn’t authorised to refer me for the more extensive tests that might show something wrong. Wife and I are going private for IVF, so we’ve been seeing a bunch of private specialists trying to get the best chances we can for that. Every one of them has recommended a semen culture test…

              The tests I was given by the GP were all urine based, but if it’s a low level infection in the tubes from the tests I was given wouldn’t have shown anything. And if it’s, say antibiotic resistant, then the several courses of heavy duty antibiotics would have done exactly fuck all… it’s a motherfucker.

              Honestly? Kinda wish it was like… fucking cancer, or a torsion, or fucking something I could point to and be like: THAT’S the issue, let’s work it out.

              • SoleInvictus@lemmy.blahaj.zone
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                14 hours ago

                I had mystery testicular pain for years. It was crippling and no doctor could figure it out. I saw literally dozens of doctors, had several MRIs and CT scans, and nothing turned up. Then I went to university and learned all about human anatomy and thus I learned most urologists are surprisingly ignorant of the topic. Certainly every one I saw was.

                It was two issues: I have a connective tissue disorder which led me to strain my cremaster muscle through daily activities, and I had compression of the genitofemoral nerve due to tight iliopsoas from working a desk job. I’ve included my protocol if you want to give it a try. It cured me and has helped a few gents I’ve corresponded with online. I’ve been mostly pain free for over a decade now, with it only recurring when I get lazy and don’t adhere to my system.

                Cremaster strain: wear an athletic supporter with a plastic cup whenever possible. It needs to be tight enough to immobilize your testicles. After the pain starts to abate, stop wearing it in bed for a week or two, then for gentle walks, increasing in duration as tolerated. Eventually cease wearing it altogether, but still keep it for recurrences.

                Bonus balls exercise: the cremaster muscle is originally a part of the obliques. For some (but not all) men, bicycle crunches with a hard “crunch” of the obliques at the end will result in contraction of the same side’s cremaster muscle. You’ll know if this is the case as your testicle will rise, as if by magic. Obviously do this exercise after the pain has started to resolve. This is also one way to see if the muscle is your issue: it may hurt when or after it contracts, but this isn’t always true

                Genitofemoral nerve compression: firmly (but not too firmly) stretch your iliopsoas twice a day for 30s each. No more, no less. The “blaster pose” in this video is what I do.

                Additionally, strengthen the same muscles doing the exercises found in this video.

                That’s it! I hope this helps. Feel free to ask questions, I’m an open book.

                • Sturgist@lemmy.ca
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                  12 hours ago

                  This…fuck…my DUDE!

                  So up until Tuesday I was driving and hour into work and, due to traffic, my way back would be minimum an hour and a half, but sometimes up to 3 hours if everything is fucked. I had considered that I might have a similar issue, mostly from not having cruise control and how I position my leg/foot while driving on the highway. Haven’t had a chance to look at the videos yet, but I suspect that they’re either the same, or very similar, exercises that my physio has had me doing.

                  I’ve not been at it long, so I’ll give it time to cook. And, as of Tuesday I’ve switched depot, so my commute is now a 15min bus ride, with a ~5mins walk on either side of it, so hopefully that’ll help too…

        • LavaPlanet@lemm.ee
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          13 hours ago

          Look into men leaving their wives when they get sick / cancer… Just peak at it a tiny bit.

      • Alexstarfire@lemmy.world
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        17 hours ago

        It’s a pretty big life change for one. Plus, their finances obviously changed. Not necessarily easy for anyone to handle those kinds of changes.

  • Snowclone@lemmy.world
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    18 hours ago

    Searching ‘‘eye drop blindness’’ is a whole ton of scary bullshit, you’d think it was an issue 30+ years old, no this is a RIGHT NOW issue. Holy shit.

  • ODuffer @lemmy.world
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    18 hours ago

    After Trump destroys the FDA, I’d rather buy pharmaceuticals from India than the USA.

    • Nursery2787@lemmy.ml
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      12 hours ago

      Umm, the FDA was the ones inspecting Indian pharmaceutical factories. That’s where all the “crappy Indian factory gets busted by FDA” stories come from.

    • real_squids@sopuli.xyz
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      16 hours ago

      Depending on your location that’s a big chunk of the market already, India is a goddamn powerhouse in that regard.